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Appendices - Cabinet paper - Disability System Transformation Update

Appendix One: current services contracted by Disability Support Services

Service Description

Funded Services

Advisory Services


  • Disability Information & Advisory Service / WEKA
  • Disability Information & Advisory Service
  • Maori Disability Services (DIAS)
  • Disabled Persons Assembly
  • Project Management and Development
  • Tangata Turi Research for Wai 2575 – the Health Services and Outcomes Inquiry
  • Carers New Zealand

Children’s Services


  • Child Development Services
  • ASD Developmental Coordination Function
  • Children's Spectacle Subsidy Management
  • National Supported Lifestyles for Children and Young People with Disabilities
  • Intensive Wraparound Support Services- Individualised Support Packages to Children, Young People and their Family
  • Joint Funding Arrangements for Disabled Children and Young People in Oranga Tamariki
  • Rehabilitation Service for Children with High Needs

Community Services


  • Home and Community Support Services
  • Supported Living
  • Choices in Community Living
  • Community Day Services/Programmes
  • Carer Support Subsidy
  • Flexible Disability Supports
  • Flexible Family Respite Services for People with a Disability (including Family Whanau Home Support)
  • Movement Programme
  • Riding for the Disabled
  • Friendship Services
  • Friendship Facilitation Service for Former Kimberley Residents
  • Community Support Maori Disability Service
  • Wheeled Mobility and Postural Management (Seating) Assessment Service



  • Enabling Good Lives Christchurch Hosting Services
  • MidCentral Governance Group Budget
  • Product Release Management, On-going Development, Support and Hosting
  • Redevelopment and Management of EGL Website
  • Independent Support for Decision-making



  • Disability Support Services for those who are Deaf or Hard of Hearing
  • Hearing Aid Manufacturers Agreement
  • Management of Hearing Aid Services
  • Cochlear Implant Service

Individualised funding


  • Individualised Funding – (including personal budgets)
  • Enhanced Individualised Funding

Intellectual Disability Services


  • Intellectual Disability Services (AT&R)
  • National Intellectual Disability Care Agency
  • National Intellectual Disability Secure Services (NIDSS) Youth Services
  • Regional Intellectual Disability Secure Services (RIDSS)
  • Regional Intellectual Disability Supported Accommodation Services (RIDSAS)



  • MOU (Joint Hearing Aid Funding Arrangements & Hearing Aids for Children)
  • MOU between MOH & MOE in regard to the national Cochlear Implant Services
  • MOU between MOH and MSD for the EGL Christchurch and Waikato programmes



  • Needs Assessment and Service Coordination
  • Local Area Coordination (LAC) through NASC
  • NASCA Specified Services



  • Contract Board/Foster Care
  • Dual Funding
  • Autism Living Guidelines
  • Assessment and Training

Specialist Services

  • Behaviour Support Services (including autism specific behaviour Support services)
  • Specialist Services - Former Kimberley Residents
  • Specialist Communication Assistive Technology



  • Acquired Brain Injury Rehabilitation
  • Community Rehabilitation
  • Rehabilitation - Specialist (Central)
  • Rehabilitation - Specialist Rehab for YPD
  • Vision Assessment and Rehabilitation Services, White Mobility Canes

Residential/facility-based services


  • Community Residential Support - Intellectual and Physical Disability
  • Facility Based Respite
  • Residential – Non-Aged
  • Residential Rehabilitation - Brain Injury
  • Respite – Non-Aged
  • Short Term Residential Crisis Respite Services



  • Contract for MidCentral Prototype Connector Services
  • Develop, Maintain, Host and Support for A Web-based Prioritisation Tool for EMS
  • Disability Workforce Development
  • Equipment and Modification Services
  • Equipment and Modification Services Credentialed Assessor Training
  • Whānau Tahi – for IT Support of Socrates database



  • National Carer Learning and Wellbeing Resource Service
  • Scoping and Development of NZQA Health & Well-Being Qualifications
  • Sleepover Settlement
  • Specialist Kāpō Maori and Whanau Services
  • Tangata Whaikaha Leadership Programme
  • Training and Education Service for Wheelchair and Seating Assessors

Artificial aides and Other

(Health related services) – to transfer to Health New Zealand

  • Contact Lenses
  • Stump Socks
  • Wigs and hairpieces
  • Breast prosthesis
  • Artificial eyes
  • Adult adaptive Technologist for Burwood
  • Adult post-acute rehab – allied health
  • Rehabilitation post-acute Adult
  • In-between Travel for DHBs

Appendix Two: statements from the Establishment Unit Community Steering Group and National Enabling Good Lives Leadership Group

Establishment Unit Community Steering Group:

The Community Steering Group (CSG), with its diverse mandated representation, enables a wide range of perspectives to contribute to informing and shaping the work being done by the Establishment Unit (EU) team. CSG has actively been involved in the majority of the work of the Establishment Unit, particularly the aspects of culture, governance, and partnership within the new Ministry. Despite the significant pragmatic and time constraints the programme faces, we consider the EU Director and team’s willingness to work in a collaborative, partnership way is creating a solid foundation for the new Ministry. CSG gave significant input to Te Kawa Mataaho regarding the recruitment of the Chief Executive. Our advice is unambiguous that the role must be filled by a disabled person to give the community confidence in the entity, and for the role to effectively champion the transformation sought. We further strongly advise that disabled person leadership is essential in the recruitment and interview procedure to give credibility to the process. CSG has been leading transformative thinking with respect to the functions of the new Ministry. CSG agree that an integrated approach is essential and strongly endorse adding the functions of ODI and administration of accessibility legislation.

CSG, and the EU, have no direct input nor oversight of the Ministry of Health integration of EGL and system transformation work programme. We consider that disconnect a considerable risk and note that early knowledge transfer occur from that programme is essential to our work programme. We further note that realising a genuine tripartite partnership relationship between the Crown, disabled communities and tāngata whaikaha Māori is an essential yet unrealised component of that work, and prerequisite of the future model. CSG note with urgency the need for investment in development of capacity and capability of tāngata whaikaha and disabled people, their families, whānau and aiga to engage with CSG in this process and to develop broad-based community consensus for this significant programme of change.

National Enabling Good Lives Leadership Group:

The National Enabling Good Lives Leadership Group (NEGL) agrees with most of the contents of this Cabinet Paper. However, we think urgency is required for the implementation of capacity and capability building and regional leadership development for disabled people and whanau. This needs to begin immediately so that they can be authentic and credible tripartite partners to realise the intent of Mana, Self-determination and Voice and create a pool of people to lead the implementation of EGL at a local, regional and national level.

In our opinion, there have been some unnecessary bureaucratic barriers which have delayed the resourcing of capacity and capability building within communities and NEGL would like to see this resolved as soon as possible.

NEGL is concerned that time is running out for all of the components of the new Ministry to be fully functional by July 1st.

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